Update 5/20 Things change on a dime.

Hello all, It is day 54 post transplant. Things were going along great, until... Gennie was having trouble with her left arm since the geginning. It is where the clots are. It has been painful and swollen. The doctors decided to remove her picc line first then remove her port and move it to her right side. They say these could be contributing to the clot problem. The port was removed last Tuesday. Wednesday we went to clinic and things seemed to be going fine. The new port worked and other than some pain from the surgery she was doing OK. Her right arm was still swollen but that was to be expected. Removing the port is not in itself a cure for the clots but hopefully will help prevent them from forming more. She resumed her meds on Wednesday. She had gained a couple of pounds but nithing to worry about. She was 94lbs that day (up 3 to 4 pounds). Friday at clinic things were much the same with a bit more weight. Friday she weighed in at 98lbs. That is eight pounds in a couple of days. Her arm was really hurting and both arms were now swollen. She was sent to the NP for an exam. Shari, the NP, did a complete exam and sent her for another doppler. It showed pretty much the same as before. She also listened to her lungs and all seemed fine. She did need blood for the first time since starting clinic. Her hemoglobin was 7.6 and when it goes below 8 they are going to give you a transfussion. All of this is pretty normal stuff. We arrived back at the apartment around 5pm. I gave her her 5PM meds and as she was sitting in her chair she had a very serious chest pain. It passed and she ate her dinner. The problem with clots is we are very worried about one of them breaking loose and causing a major problem. At 8PM I gave her more meds and within ten minutes she was throwing them up. She was pretty uncomfortable. She also had more chest pain. I decided to call the clinic but realised they close at 4:30. When this is the case we are instructed to call the 10th floor and speak with the nurse in charge. She decided to call Dr. Chung and call me back. We were instructed to give her some pain meds and come to the clinic first thing Saturday morning. We were supposed to have Saturday off and report Sunday for our normal clinic visit. Well it was a long night for both of us. Gennie was sick several times and her chest hurt if she took a deep breath.
I stayed up most of the night just because it was difficult to sleep with her hurting so much. We were at clinic when it opened. Dr. Chung was there and sent us for a chest xray. This only took maybe fifteen minutes and before we were back in clinic Dr. Chung already had the results. Her lungs both had fluid in them. Dr. Chung who is normally very casual and fun was in business mode. Still pleasent but focused. His decision was for Gennie to be admitted for a few days. As he stated "we have some work to do". Gennie's part is to void the fluid Dr. Chung's part is to figure out why it is there and correct that.
I took yesterday to go back to Poquoson for a few hours. Spent most of the afternoon with my daughter and saw a few friends. Picked up some clothes we needed up here and most importantly picked up my golf clubs. It was nice to see home again. I got back around 9:30 got some sleep and now need to get back to the hospital.
As you can tell things can change on a dime with all of this going on. Gennie had not had any problems with the transplant until she did. I have every confidence these folks will figure it out and handle it. I would say "never a dull moment" but to be honest most of our moments are dull. I guess a better comment would be "just another challange to overcome".
Well anyway that is what is going on here. Hope all of you are doing well and as always thank you for your thoughts, prayers, cards and support. It is very much appreciated.
Once again I am not going to proof this as it makes it much more fun to read.
That's all from here folks,
Bob