Gennie has to go to MCV tomorrow to have her new port taken out. We saw her local oncologist today and they were not happy with how her incision looked. They had us call MCV and report the problem. We heard back from them and they want her there at 10am tomorrow and plan on having it removed. I am not sure where that leaves us but my guess is once she has healed she will need to have another put in. This means in the short run she will have to have her next series of Vidaza injected in her belly again. This will start next Monday.
This past week was to be her first rest week of two between series. As it turned it was far from restful for her. When she went for her CBC on Monday she was running a slight fever. Not sure what was causing it they gave her Cipro. On Tuesday of that week she developed a major eye infection. We saw the eye doctor and he gave her two eye drops to combat it. On Wednesday she still had major pain and her oncologist called in Vicodin for her. This seemed to help with the pain to some extent. She mostly sat in a dimly lit room all week and tried not to complain to much. Not a good week. It now looks like the fever may have been caused from the infection from the port.
On a brighter note her blood counts seem to be a little better than last week. This will allow her to put off a blood transfusion for another week. She wants to wait as long as she can on these.
As for me I have been cooking soups. Last week I made both Colonial veggie soup from scratch and also cream of peanut soup also from scratch. They both turned out great and she enjoyed them. Not much taste good to her right now so I have been trying to make things I think she will like. Some friends have also brought food over and it was appreciated. Gennie's weight is a concern to me as she is getting just a bit to skinny. Today she was told by her PA to try and eat small meals more often. She even suggested a milk shake they have at Sonic that has 1000 calories. Not a chance Gennie will do that but it sounded great to me.
That pretty much brings us up to date. Thanks to everyone for your thoughts and kindness.
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