Monday, July 25, 2011

Lots of reading

For the last several days Gennie and I have been doing lots of reading. She, a book given to her by MCV about BMT, me, blogs I find online from people who have had BMT. The most difficult thing right now is lack of knowledge and anxiety. I believe one causes the other. The one thing we are learning is that it is almost certainly going to be a long, slow and life changing journey.

As the news gets out about this decision to consider a BMT for Gennie many friends are asking me what they can do to help. We are just at the beginning of this and right now I don't know what to ask for. I promise as we get into this I will certainly take any and all of you up on your offers to assist. It is comforting to know all of you are on our side.

There is still much to be determined over the next several months. First is whether this is the right direction for Gennie. The doctors seem to believe it is but there is much testing to do to make sure. Also Gennie has to make the final decision. Then it is on to treatments to get her blood levels where the doctors want them to start. During all of this they will be looking for a donor match for her. This search will start with her brother Spud. There is a 25% chance he will be a match. Gennie has talked with Spud and to no surprise to me he is all in. It sure would make me feel better if he is a match but if not there are many options. If any of you wish to read any of this let me know and I can post some links to the blogs I have been reading.

That's it for now. We are on our way in the morning to see our new grandson Ryker in Atlanta.

2 comments:

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  2. You probably already have these, but here goes. Someone else might find some of this an interesting read. The stuff below is just a 15-minute search and I have no idea which ones hold the most useful info.

    Patient blog - http://jimschmitz.wordpress.com/
    Org - http://www.marrowforums.org/
    Father/Daughter Patient Blog - http://mds-in-the-family.blogspot.com/ -
    Caregiver Blog - http://mylifepostcancer.blogspot.com/
    Org Site/patient blogs - http://mds-forum.org/viewtopic.php?f=11&t=139&start=0
    Patient Blog - http://hookedoncountry.tripod.com/id77.html
    Age and Transplant - http://www.sciencedaily.com/releases/2008/12/081208100850.htm
    Patient Blog - http://www.hfmaz.com/
    Patient Blog - http://jennaclanger.wordpress.com/

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